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Old 07-24-2010, 07:28 AM   #1
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That which is evil comes in very small packages...

I'm going to complain a little since this has been on my mind all night... by the by this is about my health. Just so you're warned.

Three years ago I was diagnosed with a Staph infection. According to the Doctor, the reason the staph was not going away was because I was allergic to the infection. She implied that it was no big deal, that it would only take a few antibiotics in order to at least "control it". And though "I might never get rid of it completely" it was harmless.

I took the antibiotics, they did nothing aside from make me sick.

Okay that's a lie, they helped a little...but I was completely immobile while taking them because of what they did to me.

So I went back to natural methods after taking the medicine for several months. I've tried all kinds of the typical, and not so typical, treatments and I've been promised multiple times that this thing will kill it, that thing will kill it or the other thing will. After awhile I pretty much assumed that it was MRSA since nothing was touching it enough to even cut it in half.

Something still didn't add up though. In the three years that I've had it, there hasn't been an outbreak of MRSA in my family, friends, work atmosphere or randomly on the street. The question I had to keep asking myself was why the hell is this not contagious when it should be devastatingly so?

Last night I dug into that clash a lot more than usual. I glanced through some incredibly gruesome pictures and eventually came to the conclusion that I have something called Hidradenitis Suppurativa (or HS). It's the only thing I've ever found that matches every symptom perfectly.

Which means that I was misdiagnosed and actually have a supposedly incurable disease. Heh, at least it's not contagious. XD
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Old 07-25-2010, 03:05 PM   #2
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I am sorry, but you cannot possibly selfdiagnose like that.
The docters went to medical school for several years, and unless you did too, chances that they know better are... pretty good to say the least.
Get a second oppinion if you don't trust your current doctor.
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Old 07-25-2010, 06:05 PM   #3
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I disagree, not all doctors know what they're talking about and for all you know they barely passed their classes. And I'm going on more than just a whim here, yes I have experience and more than one doctor's opinion, this is just a simplified version of what all has happened. Needed to get it off my mind is all.
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Old 07-25-2010, 08:56 PM   #4
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I have to agree that you probably need to find a different doctor and share your concerns with him/her, but I also agree with researching things for yourself when things don't add up.

I caught a community staff infection two weeks after my reduction surgery, and yeah, the antibiotics drained all my energy. But, they worked.

Did you ask for them to do a blood test from the sight of the infection? [They should have done this on their own, really.]

Don't blame the doctors, though; often, they're doing the best they can.
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Old 07-25-2010, 09:57 PM   #5
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I wouldn't say that I'm particularly blaming doctors or even insisting that all things must be studied on your own- but it's a good idea to at least know what you could be dealing with.

I haven't done a blood test yet but I've been considering having one done. Main problem with that is just choosing the correct doctor, I'm very thorough with things like this and don't lend out trust easily.

I took an antibiotic, I was allergic to it, knocked me unconscious....don't want to do that again. I have a personal love for natural medicine, I'm a major health-food nut and I have a firm belief that anything in the world can be healed by a natural method. At the very least I know that vitamins can't hurt me. Antibiotics on the other hand, can.
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Old 07-26-2010, 03:00 AM   #6
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You need blood tests - they can test the infection to see if any antibiotics will fix it. They will be able to confirm the correct antibiotic for the infection or be able to diagnose you. Good luck
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Old 07-26-2010, 03:03 AM   #7
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I wouldn't say that I'm particularly blaming doctors or even insisting that all things must be studied on your own- but it's a good idea to at least know what you could be dealing with.

I haven't done a blood test yet but I've been considering having one done. Main problem with that is just choosing the correct doctor, I'm very thorough with things like this and don't lend out trust easily.

I took an antibiotic, I was allergic to it, knocked me unconscious....don't want to do that again. I have a personal love for natural medicine, I'm a major health-food nut and I have a firm belief that anything in the world can be healed by a natural method. At the very least I know that vitamins can't hurt me. Antibiotics on the other hand, can.
Vitamins can hurt you if you overdose! And natural medicine won't cure this. To the doctor with you! If you have it, then antibiotics may not be the only course of treatment, you'll never know until you talk to someone about it.
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Old 07-26-2010, 08:20 AM   #8
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@Fruitbat thanks- luck is always appreciated. ^_^

@Saya I would like to point out that anything consumable can hurt you if you have too much of it. I have talked to people about this and natural medicine can cure it.
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Old 07-26-2010, 08:31 AM   #9
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I am very much interrested in how a diagnosis of Staph infection turned to a diagnosis of Hidradenitis Suppurativa.
Did a doctor diagnose you with this? o.O
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Old 07-26-2010, 08:42 AM   #10
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^ I'm pretty sure she's self-diagnosing herself.

Neslyn: When I got my staff infection, the doc took blood and put me on a generic antibiotic right then. He told me that he was having a blood test done. A week later, he got the results back and put me on a more specific antibiotic to fight the infection.

There's no way they could have known it was a staff infection without a blood test actually, and if you were on antibiotics [and taking them as you should while being sure to take them all as prescribed], then it should have killed it.

It sounds more like you just don't trust anyone to help you, and while researching doctors is all well and good, sometimes you just have to go and hope for the best, if it's something serious. It's also possible that they -did- correctly identify a staff infection, but that you developed something else alongside it.
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Old 07-26-2010, 08:44 AM   #11
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Originally I was diagnosed with a staph infection, but there were a few things that just didn't make sense. I have not been diagnosed by a nurse/doctor yet, but even if I were it is an extremely understudied disease. The antibiotic that is generally used for it is the one that I already took, I realize there are more of them- but I've had better luck with natural stuff.

~note that this does not mean I haven't seen other nutritionists and different kinds of doctors, I just haven't had a blood test done.~

http://www.hs-usa.org/hidradenitis_suppurativa.htm This describes to a T what I have. It's minor so it hasn't gone far enough to disable me, but it hurts. Also this is one of those things that you can self diagnose because you can physically see it. Believe me when I say that skin conditions generally do not look the same or even similar to other skin conditions.
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Old 07-26-2010, 08:45 AM   #12
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@Saya I would like to point out that anything consumable can hurt you if you have too much of it. I have talked to people about this and natural medicine can cure it.
People as in....a licensed doctor? Or people as in the lady at the counter of the nature store?

Seriously, if you have something that's more serious than a staff infection, then natural drugs aren't going to do -anything- to actually cure whatever you have. They may help some of the symptoms, but they won't actually get rid of whatever it is you have. :/

Do you want to kill the evil thing invading your body, or do you want to just pretend it's not there?
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Old 07-26-2010, 08:46 AM   #13
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Originally Posted by Neslyn View Post
Originally I was diagnosed with a staph infection, but there were a few things that just didn't make sense. I have not been diagnosed by a nurse/doctor yet, but even if I were it is an extremely understudied disease. The antibiotic that is generally used for it is the one that I already took, I realize there are more of them- but I've had better luck with natural stuff.

~note that this does not mean I haven't seen other nutritionists and different kinds of doctors, I just haven't had a blood test done.~

http://www.hs-usa.org/hidradenitis_suppurativa.htm This describes to a T what I have. It's minor so it hasn't gone far enough to disable me, but it hurts. Also this is one of those things that you can self diagnose because you can physically see it. Believe me when I say that skin conditions generally do not look the same or even similar to other skin conditions.
If you know what you have, and it's really as serious as you say...then you NEED to go to a doctor [probably a specialist] and get real medicine to help cure it and kill it. :/

Why you would hesitate for even a moment is beyond me [unless you don't have insurance or something].
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Old 07-26-2010, 08:55 AM   #14
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People as in....a licensed doctor? Or people as in the lady at the counter of the nature store?

Seriously, if you have something that's more serious than a staff infection, then natural drugs aren't going to do -anything- to actually cure whatever you have. They may help some of the symptoms, but they won't actually get rid of whatever it is you have. :/

Do you want to kill the evil thing invading your body, or do you want to just pretend it's not there?
The people I've seen are licensed, and I've already said that I'm planning to get a blood test done. And despite the fact that people disagree with natural medicine it works better than modern medicine does. Modern medicine is extraordinarily young and not all of the information is up for grabs by the general public. I've seen it cure things that modern medicine couldn't, including but not limited to, stomach cancer. (which is supposedly an incurable disease)

I have never once pretended that I don't have something serious. Yes, I have to kill the festering maggots that eat away at my flesh night and day, but until you have heavily researched modern medicine and traditional medicine you have nothing to say to me. Because an empty "this won't work" means nothing to me.
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Old 07-26-2010, 08:56 AM   #15
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Originally Posted by Tam Li Hua View Post
If you know what you have, and it's really as serious as you say...then you NEED to go to a doctor [probably a specialist] and get real medicine to help cure it and kill it. :/

Why you would hesitate for even a moment is beyond me [unless you don't have insurance or something].
It's complicated.... I'd rather not say.
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Old 07-26-2010, 08:59 AM   #16
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^ I'm pretty sure she's self-diagnosing herself.

Neslyn: When I got my staff infection, the doc took blood and put me on a generic antibiotic right then. He told me that he was having a blood test done. A week later, he got the results back and put me on a more specific antibiotic to fight the infection.

There's no way they could have known it was a staff infection without a blood test actually, and if you were on antibiotics [and taking them as you should while being sure to take them all as prescribed], then it should have killed it.

It sounds more like you just don't trust anyone to help you, and while researching doctors is all well and good, sometimes you just have to go and hope for the best, if it's something serious. It's also possible that they -did- correctly identify a staff infection, but that you developed something else alongside it.
I took it for four months, if it was going to kill it then it should have done so. No I don't trust people easily, and if it were staph it would have been contagious- funny thing- it wasn't.
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Old 07-26-2010, 09:06 AM   #17
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My apologies, but I view natural medicine the same way I view most "faith healers": It looks like a scam to me.

As for curing stomach cancer, pardon my skepticism.

I would not have waited four months, personally. If the antibiotics didn't cure it within...say, a couple of weeks...then I and the doctor would DEFINITELY have tried something else or looked into other options. Waiting four months...just no way.
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Old 07-26-2010, 09:06 AM   #18
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It's complicated.... I'd rather not say.
But...you just -did- say.. O_o...
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Old 07-26-2010, 09:35 AM   #19
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But...you just -did- say.. O_o...
No no, I do have other personal reasons for not getting a blood test just yet. So I would simply rather not say what those are, namely because it would probably take me all day to explain....

Most people view it that way. Sad really, but whatever. I know that it'll help, I know what it's done for people and most antibiotics are created from natural chemicals. The people who make those medicines just add additional chemicals to it. Some of those chemicals are as dangerous as bleach though, and unless you know that and you know what they are for all you know you're consuming rat poison.

I'm not kidding by the by, there is a blood thinner that is basically rat poison (Coumiden or warfarin) and there's a sweetener used in cough drops that is ant poison. (aspartame, commonly known as nutrasweet) Might sound crazy, but feel free to look it up.

http://www.sweetpoison.com/aspartame-information.html

http://en.wikipedia.org/wiki/Warfarin

By the way, my resources aren't from online. This is just a good place to start.
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Old 07-26-2010, 09:40 AM   #20
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My apologies, but I view natural medicine the same way I view most "faith healers": It looks like a scam to me.

As for curing stomach cancer, pardon my skepticism.
Ditto. OF COURSE they're going to say they can cure it. I know a licensed natropath...and she will say that it has to be taken with real medicine too. Its one thing to say "licensed" but its not licensed by actual doctors or anything. With nutritionists, they aren't doctors at all. Anyone can say they are a nutritionist because its not legislated like the title "dietitian" (which is a type of doctor), they could've learned that pies come from the moon in college for all you know. Of course that isn't to say there aren't any good nutritionists out there, but it is no way the same as seeing a type of doctor.

Quote:
I would not have waited four months, personally. If the antibiotics didn't cure it within...say, a couple of weeks...then I and the doctor would DEFINITELY have tried something else or looked into other options. Waiting four months...just no way.
Yeah, its not a good idea to let it sit.

Quote:
Most people view it that way. Sad really, but whatever. I know that it'll help, I know what it's done for people and most antibiotics are created from natural chemicals. The people who make those medicines just add additional chemicals to it. Some of those chemicals are as dangerous as bleach though, and unless you know that and you know what they are for all you know you're consuming rat poison.
And if they were as effective as antibiotics, they'd be banned or regulated. There's a reason you need a prescription, because bacteria can become resilient to antibiotics if we take so much, which is why its not a good idea to take it from some guy who read up on Chinese medicine once.
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Old 07-26-2010, 09:43 AM   #21
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No no, I do have other personal reasons for not getting a blood test just yet. So I would simply rather not say what those are, namely because it would probably take me all day to explain....
Oh...kaaaay...but you know that they already had to take a blood test from you in order to diagnose it as a staph infection in the first place, I hope.

Quote:
Most people view it that way. Sad really, but whatever. I know that it'll help, I know what it's done for people and most antibiotics are created from natural chemicals. The people who make those medicines just add additional chemicals to it. Some of those chemicals are as dangerous as bleach though, and unless you know that and you know what they are for all you know you're consuming rat poison.

I'm not kidding by the by, there is a blood thinner that is basically rat poison (Coumiden or warfarin) and there's a sweetener used in cough drops that is ant poison. (aspartame, commonly known as nutrasweet) Might sound crazy, but feel free to look it up.

http://www.sweetpoison.com/aspartame-information.html

http://en.wikipedia.org/wiki/Warfarin

By the way, my resources aren't from online. This is just a good place to start.
...uh huh...*coughcough*paranoid*coughcough*

Welp, all I know is that the anti-biotics cured my infection within a couple of weeks, and I'm not sick otherwise. Also, rat poison tends to kill instantaneously, so...if medicine contained it in any significant amount, I'd already be dead. So would a lot of people.

Anyways, you're the one who has to suffer from your infection or what-have-you, so....I give up. Have fun with your maggoty infection. Me personally, I'm going to keep trusting doctors since they've never given me a reason not to, and also because I'm not a fan of maggots.

[How do maggots keep getting in the wound if you're keeping it clean and dressed and properly medicated? That's just bizarre..]
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Old 07-26-2010, 09:51 AM   #22
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Believe what you will, I'm done arguing with walls.
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Old 07-26-2010, 10:13 AM   #23
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Don't worry, I'm sure that taking plants full of unregulated, unknowable doses of chemicals is far superior and more effective than medicine that has been developed using the scientific method.

And why confer with some ignorant asshole who spent nearly a decade learning how to do his/her job.

They're all stupid and just want to fill us full of pills anyway.. then cut us open and eat our brains.

/sarcasm
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Old 07-26-2010, 12:53 PM   #24
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The joys of the internet.. You know, those 8 years at med school are just used to teach doctors to talk all confusing stuff. The actual diagnosis are made from surfing the internet.
They will just tell you that you have cardiac sarcoidosis even if you have the cold.
Say I have a headache, I could jump right into saying I had brain cancer.
Without seeing a proper docter, I would have no way of knowing if it was a normal headache, a migrane or brain cancer.
I am sorry, but if you refuse to have the blood test done, I can't feel sorry for you.
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Old 08-11-2010, 11:17 AM   #25
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now I'm not siding with the original poster, but it is entirely possible that she was misdiagnosed, it happens and more often than we think. Doctors let their trainees handle "the small things" all the time. the fact no one wants to acknowledge (and I don't just mean the people on this forum) the fact that even our doctors make mistakes is quite sad.

Neslyn, Please do go get a second and third opinion if it makes you feel better. you deserve to know exactly what's going on with your body, at the same time don't drive yourself crazy believing you have something before getting a medical professional to take a look at it.
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